Update on ColeAugust2,2008
First of all let me say thank you to everyone! Second I did not know my son posted that little paragraph about me, his mom. Everyday I learn more about his heart…and it truly makes me proud. Now as most of you know we had to go back to Atlanta (to the childrens hospital) on Thursday, when we got there we were all a little fatigued and nervous, we went to the back and waited just a few short minutes and the nurse came in to make any note changes for anything that may have changed and unfortunately the only thing that had changed was the fact that he almost passes out everytime he stands and starts to walk, this has gotten more frequent. Well one of the doctors came in and of course I was looking for any sense of relief or high spirits and she did not give me any so automatically I knew what she was going to say. She had some paperwork I needed to sign and that they had a couple of the test back and she would review them with me well Cole is sitting over there quiet as always never says anything. Well she waits for the second doctor to come in and them two are going to review the test with us and what they need to do to help Cole. They tell us that they have gotten part of the test back, one was the biopsy of the liver and the other was the biopsy of his stomach. The stomach first she told me was follicular hyperplasia which meant some abnormal cells and inflammation with duodenitis, which was the same thing, and that he has mesenteric adenitis which is causing the large lymph nodes in his abdomen. Then she says and his liver, well it is not so good, we can not do anything to fix it with medicine, therapy, so I knew that meant liver transplant and I could not stand the thought of possibly losing my child. After discussing this she went on to physically check him and while she was assessing him she realized she could not palpate (feel) his liver, this was a change so she ran some blood work and when it came back she came in there to tell me that they were PERFECT! His liver function was 100%, enzymes were normal. She said she does not understand this well I told her I do that it was God he healed my baby, he took that diseased liver and healed it. He knew I could not bare anything else…So then they started addressing the dizziness and vomiting and such and realized that there may be a tumor or something in his brain that may be causing pressure so we have to have a CT scan and check out his vagal nerve and all. He had also grown 3 inches in 2 weeks and that is cause for concern I guess, so we have to monitor his growth hormone and nothing will be done unless he reaches 7 feet, they said. I believe that God has something great in store for my little man, Cole has said before that he loves football and wants to make that his career but he also wants to be a Preacher and I think that may be what he has in store for him, because he has endured so many obstacles and I believe God wants to use him to his benefit to help and reach others. I can only say that because of each one of you this has been made possible and I am sure that God is up there smiling down because this precious little boy has brought the world together and I am sure that is his plan. Thank you all for praying for my Cole, and for my family. You will never know how much it means to me. I am going through so much right now that no one even knows the half of it, but just knowing that there are a world of people so great as yourselves that lift my family up means the world to me.
With lots of love and may God bless each of you,
Leslie (Cole’s mom)
First of all let me say thank you to everyone! Second I did not know my son posted that little paragraph about me, his mom. Everyday I learn more about his heart…and it truly makes me proud. Now as most of you know we had to go back to Atlanta (to the childrens hospital) on Thursday, when we got there we were all a little fatigued and nervous, we went to the back and waited just a few short minutes and the nurse came in to make any note changes for anything that may have changed and unfortunately the only thing that had changed was the fact that he almost passes out everytime he stands and starts to walk, this has gotten more frequent. Well one of the doctors came in and of course I was looking for any sense of relief or high spirits and she did not give me any so automatically I knew what she was going to say. She had some paperwork I needed to sign and that they had a couple of the test back and she would review them with me well Cole is sitting over there quiet as always never says anything. Well she waits for the second doctor to come in and them two are going to review the test with us and what they need to do to help Cole. They tell us that they have gotten part of the test back, one was the biopsy of the liver and the other was the biopsy of his stomach. The stomach first she told me was follicular hyperplasia which meant some abnormal cells and inflammation with duodenitis, which was the same thing, and that he has mesenteric adenitis which is causing the large lymph nodes in his abdomen. Then she says and his liver, well it is not so good, we can not do anything to fix it with medicine, therapy, so I knew that meant liver transplant and I could not stand the thought of possibly losing my child. After discussing this she went on to physically check him and while she was assessing him she realized she could not palpate (feel) his liver, this was a change so she ran some blood work and when it came back she came in there to tell me that they were PERFECT! His liver function was 100%, enzymes were normal. She said she does not understand this well I told her I do that it was God he healed my baby, he took that diseased liver and healed it. He knew I could not bare anything else…So then they started addressing the dizziness and vomiting and such and realized that there may be a tumor or something in his brain that may be causing pressure so we have to have a CT scan and check out his vagal nerve and all. He had also grown 3 inches in 2 weeks and that is cause for concern I guess, so we have to monitor his growth hormone and nothing will be done unless he reaches 7 feet, they said. I believe that God has something great in store for my little man, Cole has said before that he loves football and wants to make that his career but he also wants to be a Preacher and I think that may be what he has in store for him, because he has endured so many obstacles and I believe God wants to use him to his benefit to help and reach others. I can only say that because of each one of you this has been made possible and I am sure that God is up there smiling down because this precious little boy has brought the world together and I am sure that is his plan. Thank you all for praying for my Cole, and for my family. You will never know how much it means to me. I am going through so much right now that no one even knows the half of it, but just knowing that there are a world of people so great as yourselves that lift my family up means the world to me.
With lots of love and may God bless each of you,
Leslie (Cole’s mom)
